Crohn's Happens Continued..

So back to where I left off. My appendix ruptured while I was being admitted for emergency surgery. So I spent 9 days in the hospital recovering from the horror of it all. With a 3 month old baby at home.
Not one mention from the surgeon about Crohn's he did tell me that the entire area around my appendix was very inflamed. Yeah no shit...

So a few more months went by and the pains were back what the hell. So I went back to my doctor this time she was concerned again and sent me in for a ct-scan of my abdomen. Thank God! Her nurse called me the same day and asked if I could come in to the office. My doctor who I love! Was a little worried looking as she began to tell me what she had seen. As soon as the words Crohn's came out I was relieved-freaked the hell out but relief. I quickly told her about my family history of the disease and all about the issues I had in high school with my stomach and weight loss..

I was in Indianapolis at IU Health getting my 1st colonoscopy with in the week. My mom took me she was so freaked out about the whole thing. Again I got lucky my Dr was very knowledgeable and started me on treatment the same day. It was quite a shock to be suddenly taking hand fulls of pills several times a day. While caring for a young baby. My face swelled up like a moon I gained back about 20 pounds of just lost baby weight from the prednisone & became a raving maniac. Thankfully my doctor worked with me & we found an easier treatment plan that worked for a year. Until I was back in the hospital again.

All was good then I surprisingly found out I was pregnant with our second child. Shit. I stopped taking all my meds for Crohn's against doctors advice. I could not take the risk for my baby. I was so lucky half way into the 2nd trimester I felt AMAZING!! All was good until about 3 months after my baby girl was born.

I again was in the hospital on Valentines day having a emergency surgery for a staph infection in my boob. WTH.. This set my Crohn's into major flare up.

Then came in the big guns Remicaid.. Not only did the infusions take hours to do I had to travel 2 1/2 hours each way to get the treatments.. Give me a break. These left me so tired I would come home and sleep for 2 days thank god for my mom and husband. I was on this for over a year with my CD only getting worse. At the end of the year I had another scope & was told I would need a resection asap.. Shit shit....

Then came the bomb! Our baby girl was diagnosed with a large golf ball size tumor on her skull. We were all consumed with her health for the next 3 years. I put my surgery off no meds my insurance was cancelled. Life got crazy real quick.

Finally just this past summer 2012 I was able to get medical coverage. Thank god! I got back in with a Gastro doctor closer to home only an hour drive. He has been great I started taking a lot of vitamins and Cimzia. So far things are going OK  My most recent scope showed the same areas of inflammation as before with an inflamed colon. But things are going OK.

What more can you ask for. In our family of 4 we have 3 rare diseases. So calm is great for us. As we continue to live our lives. 

Stay around for more storied from a Crohn's mom! 

Remember if you see this check us out on Facebook Crohn's Moms!! An awesome support system for Crohn's!!